Excerpted from CURE® Magazine – Metastatic Disease
Komen NYC CEO Linda Tantawi recently sat down for an interview with CURE® to discuss addressing the needs of underserved communities and how education is key in helping women in the Greater New York City area. Following in an excerpt from that interview.
How has Komen NYC helped to raise awareness surrounding metastatic disease?
A metastatic patient might look quite well. That doesn’t mean that their joints don’t hurt, or that their fingers and toes aren’t tingling, or their nails are in the process of falling off, or they are nauseas or have diarrhea.
In the metastatic community they call it scan, treat, repeat. So, women who are metastatic will always be in treatment. So, for someone to say, “You can beat this.” There really is no beating. They’ll always be in treatment for the rest of their lives. Some women are lucky to respond very well to treatment and they’ll be (no evidence of disease), but that’s not everyone. We know it is a constant battle against tumors returning. But there are so many new treatments, and there a lot of reasons to be hopeful.
There still is a lot of work to be done because 42,000 women a year are dying from this disease. Susan G. Komen funds a brilliant research portfolio with a large proportion of that research portfolio geared toward metastatic disease because we need to figure out why the disease is recurring. Can we at some point stop that recurrence? And if there is a recurrence, how can we shrink those tumors to extend life? The metastatic patients aren’t looking for weeks or months, they’re looking for years, especially patients who are young in their 30s. We just encourage women to take care of yourselves, take care of your families, live your best life and at some point will have significant progress.
Read the full interview for more about The Pink Ribbon That Connects OUR Community!